END OF WEEK FOUR
Amy inspired us all with her writing on Monday night and I am so grateful for the light she can shed on this difficult situation. Her presence, like Elisa's and Paul's, always brightened the room for John and me as well as others.
Monday and Tuesday were rough days and nights for John. Backward steps in many ways and very discouraging - erratic blood pressures (high and low), low oxygen levels, fevers, trouble with feeding tubes just to name a few things. General summary by both primary doctors is that the Guillain-Barre is still active and running the show, not really in retreat yet. There are very small improvements, primarily in his mouth, including gagging and some weak coughing now. It is clear that the pace of the removal from the ventilator on Sunday and using just the tract was too swift. A more prudent speed and course of action has now been put in place. Eventually we will move forward daily, but for now it is still a rough roller-coaster ride.
As always, when he is not sleeping, John remains optimistic and eager for his therapy sessions. The family continues to be grateful for your prayers and the many, many notes John is receiving.
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